some things {just} never change

so to catch you up on the latest here in our corner of life:

Sam is now done with school, moved out to the town 30miles from us into a cool little basement suite and has been working for a local farmer there for about 2 months. 

He seems to really enjoy his job (working with both cattle and grain -- the grain seeding and all that is included in that is a new adventure for him). 

On this past Friday, Dennis and I headed into Brandon for a quick trip to pick up some farming supplies and received a phone call from Sam that should he go to the dentist to look at the tooth that the calf broke when it kicked him in the jaw!
We got things sorted and got him to the dentist before he left for the weekend and then off to the hospital to check on concussion risk and other issues that may have come from it. He was checked over by the nurse and sent for X-rays (in case of a fracture) then we were sent back to the doctor to have him fully checked out.

I went in the office with Sam for a few reasons (one of them being that we are not fond of this doctor or the bedside manner but in our small town {and saddly even neighbouring towns} there is no choice of doctors -- you hav to use the one they 'gave you' basically)but mostly for moral support as he is not used to having to deal with these medical issues on his own AND lets not forget ... well... he forgets!
So I was there to help him out.
Firstly, she didnt even look at his X-rays, stating that she could 'see he had no fractures', then when he told her about  his BI and seizures and whatnot, she 'listened' (using that word loosely here) because as it turns my concerns were totally founded -- but that comes later. She said he had no concussion but it was good for him to come home with me so we could be there if 'anything happens' (now what would happen if there were no concussion or fractures?!) Take it easy this weekend and no work til Monday...
NO CONCUSSION--- yet he had blurry vision and a headache... ok... maybe I am over protective.... but really!?
NO FRACTURE -- from a glancing look and a bit of poking with her fingers... ok no screaming from Sam either... so thats good.

Sam came home with us, slept crappy, ate very little and looked like hell on Saturday morning. Swollen face, circles under his eyes and tired. But he got thru the day and did a bit of tinkering, admittedly he went for a ride on the dirt bike (which I was against) and then headed home to meet some friend for a movie intown (but no driving). Woke up feeling a bit rough on Sunday but felt better than Saturday -- so he must be on the mend. Then up on Monday morning for work...
dizziness, nausea, blurry vision and a general feeling of crap. NO going to work, calls me and i tell him to get to the doctor again and make sure she looks at the xray  AND listens to you!
Luckily h is able to get in in the afternoon and this time she listens ... i think.
Her diagnosis is that Sam was having a delayed reaction to Fridays activities (concussion!?!?!) and he probably has an infection -- so med's so that it keeps a fever away and risk of seizures -- and no work for another 2 days! (updated count of days off now 4! Four days with no pay and Sam is stressing a bit from it...)
Some things just never change! I thought we were done with doctors and them not listening to us about Sam and his BI. Doctors need to start listening to the caregivers about things - no matter how small or 'insignificant' they think the information is! We usually know a lot more about BI's, symptoms, new treatments, expectations... you name it we usually know all about it! JUST LISTEN DAMN IT and stop making us feel small and crazy! We 'specialize' in this, they usually don't.

**sigh** Ok Rant is over: Sam is starting to feel better and hopefully back to work tomorrow.

One day at a time...

wasnt that a TV show!? (LOL for those you who really know me... I love 70's and 80's sitcoms)☺

but that is our motto in this house!

As I sit here typing this out, our Sammi is upstairs sleeping in our bed (we have a tv in our room) with a fever, sick stomach and vertigo. It is his normal day for staying home but today he is sick. I have had him up and in a cool shower, gave him Tylenol and sent him back to bed. He white as a sheet and looks horrible. I always get worried when he has a fever since we have to be sure the fever doesn't go to high and trigger seizures. (never have had one yet but the doctors still tell us to be very careful with them).

Last week on Tuesday he came home from school fatigued. White, slightly limping and his left side ever so slightly drooping. It took until Monday for him to 'get back to normal'. Then he came home last night feeling sick and just blah. So i wonder if it wasnt starting last week and finally hitting him now... who knows.

Sam and I had a great talk last week and he has decided to have the plastic surgery done on his head. This will be a metal plate put in to cover  the 'hole' where the bullet entered. I was shocked when he told he that this was what he wanted to do AND that  he had been thinking about it for quite a while now. He says he is bothered by the way people will watch his head and not look him in the eye when they talk to him (usually this means his friends). Around the entry wound area is not only a long scar but the 'hole' and a person can see his heart beating there and it will pulse or bulge when he is stressed or there is pressure from straining. We had told Sam (from the beginning) that this would be a decision up to him alone. It is him that would have to live with the scar, the 'hole' and whatever else is involved, and we have never brought it up again.  And his reasons for wanting to do it make sense to me. He is a teen and wants to not be different. But there is more to it... kids are also asking to touch it. This is one thing that distresses me! Sam has said that he didn't mind at first but now it is getting to be too much.  So we have talked about it, and I have called our TBI co-ordinator (Gail) and am waiting for her to call me back to see how we go about getting a consult and with who.

Sam lately has been having episodes of vertigo. He will get dizzy when sitting then standing (which is normal for a lot of people) but he will also get dizzy when walking, standing AND while sitting! So I hope to ask Gail about this too. I know it is normal for a lot of survivors but it doesn't hurt to just double-check. We have told Sam that he needs to be aware of when it happens and what happens b4 he feels the full effect of it so he can know while riding a bike or climbing up a ladder, etc. to get himself in a safe position.

He is still having stomach issues to the last while. Meaning his stomach will physically hurt, then he tends to lose his appetite. I havent found much info on this so it will be another question for Gail.

Once again our lives are taking a turn and things will be very different around our house, but for now I will leave it for a future date to talk about! BUT we did sell our house and as of tomorrow (Mar 25) it will no longer be our house! YAY!!! Thank you Lord!

My blog will be under construction the next little while as I get used to the new formats and get the right background and widgets on here. I need to transfer over the info from the old blog once all that is in place! If there are any ideas for here please let me know!

Long time no update

I know I know it has been a loooooong while since I have posted on here. Please dont think it is for lack of info to share... more like lack of energy or gumption to put it on. And sadly the reason is because I am tired of explaining to people that these issues are partly due to being a teen and partly to having a TBI. I am tired of people saying "oh that is just normal teen behaviour" or "all teens go thru this". I just want to scream and smack them! Then this past weekend we were at a family dinner and 2 family members were trying to put alot of the crap that was going on with ALL the kids on Sam. I do know that he is not perfect but with a TBI when there is energy and hyperactivity it can feed Sam's responses to things... so I tried  be polite and just made the observation that "it is all the kids that are 'feeding' off of each other and thier attitudes" the reply I got was"ya but it is so much easier to blame it on Sam... right Hannah." I mean seriously!!! WTF!?! It was a good thing that I was in a seperate room when that comment was made or I may be typing this from a cell.

I have been working on getting off of the pariet pills (for my GERD) and am now on day 2 of no pills and week 2 of no coffee (real coffee I mean-- de-caf is in my morning routine) and a pile of other foods that are out of my diet. (it seems that tea will be out of it too after this cup I just had-- major burning going on right now!) So with all this detoxing going on in my system it is no wonder I got sick on Friday with a lovely chest cold that is moving into my sinuses. I have been on the couch for almost 4 days straight, sleeping and resting, folding a bit of laundry and a bit of houseowrk here and there.... and slowly getting WORSE! Wednesday we are off to Wpg to take Sam in for another neurologist appt. We have to inform the doc. that Sam is back to a 4 day week and there was a huge improvement in him once we changed back to this.  SO we will see what he says about it all. And to really make it a memorable trip, we are driving in and out in one day! I was hoping to get a room at the Ron. MacDon. house but there is no room, so Sam will be in fine form by about noon. (it is a 3 hour drive each way) and we try to make use of the time and do some shopping at Costco anad Value Village while we are in the city... There will be lots of prayers sent up for our trip!

This week is exam week for the highschool and the boys write one today and one tomorrow. And trying to get Sam to remember things again (like books to study with or review sheets) has been a HUGE battle for Dennis and I. There was a blow up last night about math studying and routine and trying to get him (Sam) to understand that this is important for him to remember-- SO USE THE iPOD!!! Cross your fingers for a better semester next term.

I just cant seem to get my thots down on here straight, there is so much to say and nothing really. It all sounds so trivial and to be honest I couldnt handle another 'just a teen thing' from anyone. I honestly had expected us to be in a different place with all of this by this time, not crying daily about something Sam has done or said to me, or something someone else has said to me about it.January was not a great month, so maybe February will be better.