He's baaaaaack...

Sam has been home from Brandon for  few weeks now and things seem to be on a more even keel.  We can see he is working hard to not snap all the time but still has a few moments. He has also decided to start reducing his meds because he is tired of feeling like crap and so out of it all the time. We spoke with him about it and made it clear to him that there might be the possibility of seizures, the repercussions of seizures (not going for his learners or driving our equipment, possible no summer camp) and he said he understood but was still going to back off the val proic acid. He is now down to 1 - 250mg a day and we also learned he had stopped ALL morning meds. His tremors are not really subsiding but his energy levels have very noticably increased! SO much so that while we were camping he was throwing the baseball or football a few times a day for an hour or two! He has been out walking every morning or on the bike or riding the horses. He is starting to look like and act like our old Sammi.

Which is nice because we really missed him...

We should be seeing Dr. A in July or Aug and we will share all this with him then. Our hopes are to go a more holistic approach for Sam to not only the meds (possibly see if there is a natural med for him if needed) but with this mental state too. He needs to learn how to deal with stress and issues BEFORE they arise into such a place that is will induce seizures. And I am happy to report that Sam is totally on board with this all!

The 30 or so lbs he gained over the winter really have made a difference to to his overall physical look too. He looks better but is just out of shape, so he is working hard to get back into the swing of working out and exercise so he is in shape.

We are also still waiting to hear aboaut the seizure dog, which will be a big help if Sam can get his meds reduced. Then he will have the dog to help with his recognition of rising seizure possibilities. We are waiting on the next step which is the home assessment.

The bracelet campaign was AMAZING!!! SO far I think over $700.00 was raised but I will be going out to the businesses and picking up all the donation boxes this week and will have a grand tally later. Dennis and I think that next year we will buy the bracelets again but the money we raise we will keep to our TBI group and they can decide where and how to spend the money to help spread awareness. We have really struggled with the MBIA this last while. There have been quite a few instances where I seriously have regretted having the donations given to them -- but I did say I would so I will honour it but not again. LIVE and LEARN!

Living on the edge...

The last few weeks and days have been incredibly crazy  hectic .... stressful here. I am not usually one to talk much about Dennis on here but lately he seems to be having his own issues with his injury which have been causing me more stress. He is on a one track mindedness route it seems and he can't seem to get off it. He is literally eating, breathing and living the farm.... which is fine to a point but he gets stressed about things and will only talk about cows, tractors, the rain and how it is going to effect crops, fencing, cows, calves, equipment ... did I mention cows? So when I have had to deal with issues with Sam (and believe me these days there have been MANY of them)he is hard to get him to hear me and give me the help I need. He hears me talking but not always hears what I am saying -- almost as if I am speaking french to him. The other night Sam was having a major sensory overload issue (he had spent the weekend with grandpa and grandma then came home to 7 people, 5 dogs, the usual Sunday dinner rush, getting lunches ready for school on Monday, dishes to be washed, etc). He was vibrating like mad and his mouth was going a mile a minute to match his attitude. Dennis and my mom were talking and Sam was in his world... I had to take Sam out to the porch to help him to get re-focused on the task at hand and to regroup... Dennis tho most of the night had to keep asking things to be repeated. He said he was not able to follow anything being said and it was extremely evident ... to me.
I struggle with pointing out Dennis' deficiencies. I am always scared I am going to say the wrong thing or not get across what I am trying to say OR that he will think I am treating him like a kid or worse. So I let it all go until I can't hold it in anymore and then look out. Then I have a melt down ... and it ain't pretty...
I need to learn how to talk to him and let out my frustrations in a healthy way before things get to where I am feeling like I waaaaaay out there on that darn ledge.