Tuesday, February 7, 2017

Some days he's the windshield... but not today

A few months back, Sammi had some minor surgery, which was the removal of some lipomas (fatty tissue deposits and they have come back. Yesterday he went to the doctor who removed them and he was informed that he has something called Dercum's Disease and that he will continue to have these lipomas pop up from now until he is 35. If they cause him discomfort or pain he will have to go back to the doctor and have them removed....

which is done surgically and in a hospital...
minor... yes...
but still a surgery ... every time to remove them.

The few he has had, have caused discomfort (which may be a good thing since that may mean that he caught them before they have gotten too bad and caused any pain).

I am so frustrated at this new development as it is once again NOT a well known (it is rare in fact) 'disease' and the info we found on it seems even rarer as it is typically WOMEN aged 45-60 who get these and not 20 year old young men (although it can affect anyone of any age)!  I have posed a question to Dennis (not that either of us have any real medical knowledge) that if his BI could have anything to do with this new issue? He doesn't fit into any of the categories of symptoms other than he has lots of Lipomas ( at last count -- about a month ago -- he had about 13-15 'decent sized' ones)

So maybe when the bullet ripped through his brain, it caused a rewiring that is causing his body to not breakdown the fatty tissues in his body... but since there is no real information on why this is all pure speculation....

and frustration....

Each surgery will mean a week or more of work (depending on where the lipoma is located) and that means no income. We have applied for the disability credit for Sam  but have been denied both times. This credit is not an income for Sam but just the ability to earn a bit of extra money before he would have to pay taxes. And he is on his own, working and living... which means he has bills to pay! So a few days off even will effect his paycheque and bill paying abilities!

We have now waited for almost 3 months for an appt for this round of lipoma removals, and he has more than when he initially went in for... sigh... and I can't do anything because he is 21. He forgets to call, or maybe doesn't want to call, to gets too busy to call to check on why he doesn't have an appointment.

I try not to worry. I keep handing it to God, but I keep taking it back...





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