hey that should be a song! Oh wait it is!! lol reminiscing the 80's...
Actually what is means is that next week on May13, Sam will be seeing the neurologist (the surgical one) for his "all clear". From what we understand from the last time we saw him this date is when now Sam is at the lowest possible risk for infection (which he will have his whole life due to foreign objects in his brain) and his lowest chances for seizure (which he has never had!! Hallelujah!). It means he can go back to gym class, bike riding (we have already been doing -- erp) and things the like. All this is as long as Sam is able to do some self awareness checks (which he has a hard time doing right now!) He still gets headaches, dizziness, his appetite is iffy, his fatigue is not much better now than when it was in November-- maybe summer holidays will help with that and he concentration is not the best. All things I hope will be improved by my being home all the time (if he needs to stay home other than Wednesday than there is no issues to deal with) and that i will be home all summer to help keep him in a routine of organization. By this i mean we will have time each morning to clean rooms, and tidy the house, in the afternoon we will have 'quiet time' and then there is physical activity that i will be sure he is doing. If i were to remain at work it would be hard to instill this if I were not home.
I am almost done the scrapbook i started for him in Wpg. I need a few more letters to get from people and i think 1 or 2 pictures. I cant wait for it to be totally done and I think Sam wants it done too. He keeps asking to see it, but i say no since I would like it to all be new to him when he sees it! I wish there were a way to post the blog in the book and some of the responses that i have had. But i am not that technologically ept! (I am lucky to be able to post in here some days! lol) The book is photos of Sam with people that were involved with us during the whole 'episode' in Winnipeg. I have pictures of him with nurses, doctors, OT's, PT's, friends, family, people that gave their time, money and prayers to us! It is amazing the number of people that were directly in our path during that time! I wish I could get pictures of everyone that sent cards, foods, flowers or gifts! I hope that some of them see this blog and this post in particular and know that we gratefully and most humbly appreciate them for their caring words and actions! You were all such a blessing to us! Thank you!
ok enough sappy... tomorrow is Sam's weigh day! Please pray for good news!